Search

It Ain't Easy Being an Advocate!

Advocacy comes in all shapes and sizes. There isn’t one tried and true way to advocate, which is a great thing! In 2021 we are blessed to...

BEaware!

Today on Trisomy 18 Awareness Day I want to reflect on what it means to be the parent or loved one of a person given a diagnosis labeled...

Rare Disease Day 2021

Today on Rare Disease Day 2021 I would like to take a minute to point out just how rare Bella Grace truly was. Trisomy 18, which is a...

It's Tubie Time! Feeding Tube Awareness Week

It is Feeding Tube Awareness Week. There are nearly half a million people in the US with feeding tubes, two hundred thousand of those are...

Coming Soon!

We're very excited to get this website off the ground. Please be patient with us as we add content and continue to evolve. It's our...

We're just getting started!

We're very happy to announce that The Bella Grace Foundation is an officially filed non-profit corporation. We’re working hard to honor...